Abstract
Deaf and hard-of-hearing (DHH) people report ineffective healthcare communication. Limited research has been conducted on healthcare communication during pregnancy. This study’s aim was to assess communication accommodations and experiences during pregnancy for DHH people.
An accessible web-based survey was administered to a non-probability sample of DHH people through national organizations, social media, and snowball sampling. Eligibility criteria included being 21 years or older; given birth in the U.S. within the past 10 years, report hearing loss prior to the most recent birth. Questions focused on healthcare experiences and information access during their last pregnancy. The sample included 583 respondents for the present analysis. We describe the communication accommodations requested and received during pregnancy, segmented by preferred language.
Most DHH participants reported communication with prenatal clinicians as “good” or “very good”. On-site interpreter services were most commonly requested by American Sign Language (ASL) only and bilingual DHH people. Interpersonal communication modification requests (e.g., speaking louder) were rarely obliged.
This study is the first national examination of requested and received communication accommodations for DHH patients during the perinatal period.
Healthcare providers should work closely with patients to ensure effective communication access is provided.
•Accessible healthcare communication for DHH patients is protected by federal law.•DHH patients request a variety of accommodations during perinatal care.•Healthcare providers must work with patients to develop communication access plans.
