Abstract
In this article, we focus on the contemporary experiences of families of children with special health care needs (CSHCN) & illustrates the extent to which they are embedded in multiple systems of care that include health insurance plans, public supports, community-based programs, & a variety of specialized providers. Data are presented from the Family Partners Project, a national survey of 2,220 parents of CSHCN conducted from 1998 to 1999 in 20 states. We address 4 critical issues, including the complexity of current service delivery systems, the problems experienced in obtaining needed specialty services, the coordination of services & the role of case managers, & parental ratings of health plans. 7 Tables, 17 References. Adapted from the source document.